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My 6 months anniversary as a widow is approaching. I still cry almost every evening. I have begun listening to a meditation audio book before going to sleep. Tonight I got back up and searched the Internet and came across Continuing Bonds Grief Theory. It is a very soothing theory. The theory...

Paul, my husband passed this morning. He was well medicated and his passing was peaceful. He is free and at peace. I thought I had had a lot of anticipatory grief, but find I am unprepared for his passing. His decline seemed so sudden at the end. I never thought we would have Christmas 2022...

PALS had a GI bleed last evening that sent us to the ER. We got home around 3 a.m. He had had Naproxyn 48 hours prior and I want to believe this was the culprit. However we had just started Neudexta in a capsule form. He had only taken this by mouth. This was a compounded medicine from a...

I have searched through several of the threads on secretions. I can see we should start pineapple juice. The trilogy he uses at night has a humidifier but during the day he doesn't use a humidifier. Maybe we can get a room humidifier. Our palli ative care nurse who made house calls resigned...

Synapticure, the telehealth neurology company Brian Wallach started had speak with an insurance consultant today. She named a federal initiative whereby the federal government was having the states have their Medicaid plans include home care for patients who are at risk for being...

The HCP said we could try glycopyrrolate and scopolamine together but I think it has caused my PALS to have some confusion. There doesn't seem to be any infection or anything else wrong. Has anyone experienced confusion with either of these drugs?

My husband has been complaining of itching for weeks now. There are places where he does have a flat redness and there are places where he itches without redness. Now his face has this flat redness. Does Riluzole cause itchiness? Can the dose be lowered for Riluzole. I will ask Emory through...

PALS has a girth that has gone from 44 inches to at least 49 inches since starting Kate Farms. I believe this is around a 40 pound gain, but he appears even heavier. I have a request in to speak with Emory's dietician. We started at 2200 calories per the dietician and then dropped to 1800...

My PALS and I are suppose to go to my son's wedding in two weeks. There are a number of problems cropping up. First the Easy Lock appears to be broken. Is it safe do you think to just depend on using the manual release. This does seem to work. Next my PALS likes the nasal masks by Circadiance...