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Peace to you and your family. I am sorry for your loss.

We got rid of the brackets for the Dynavox as well. We used a desk that the wheel chair legs could fit under. My PALS spent much time at the desk.

My husband had an eye gaze machine which would help your husband communicate. This machine uses the eyes and infra red to pick out letters on the machine(computer). I believe phrases can be stored in the computer as well. My husband's speech was pretty good so we never used the eye gaze for...

The power wheel chair is going to need a bracket to hold the ventilator. Also in your home, you will need to find a suitable table to place the ventilator on. The table needs to be lower than the bed. Does he have a hospital bed? There can be a problem with the arms of the Hoyer Lyft not going...

Diane, Your Pals sounds like a wonderful family man. I can surely relate to how new this diagnosis is and how sad and heartbreaking the situation is. It is very difficult at first to wrap one's head and emotions around the situation that a loved one has ALS. I still haven't completely wrapped...

My husband adjusted to bi-pap well. However we did try several different masks. I think this is fairly common. Just like with CPAP there are masks just for the nose or that cover the face and nose. It might be helpful if the respiratory therapist has several masks on hand for your husband to...

Hi Gmathyme, Sorry to welcome you here. There are people on the Forum who will be able to lay out some ideas/options better than I am able. My husband was diagnosed at age 76 during Covid. We were able to do our clinic visits by Zoom. I don't know if the VA near you is still doing Zoom...

Hi Diane, If I want to log out, I go in under my name in the upper right hand column. Am I right to infer that your PALS is living alone and has a caregiver in the mornings? This particular thread under Current Caregivers is limited to Caregiver comments only. The PALS thread is limited to...

Sorry to welcome you here Diane. ALS requires adaption. What a PALS can do at one point, they won't be able to do at a point further down the road. We were able to get into a daily routine which lasted quite awhile. We had a caregiver about 4 mornings a week and the afternoons to ourselves. I...

The one year anniversary of the passing: I am so proud of Paul. He learned to use the eye gaze and would text messages. He stayed interested in everyone's activities and current events. He was kind to everyone. The day before his passing we watched Interstellar, The Martian, and 2001 a Space...