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I don't deal too well with x rays either and I gag easily...can manage to brush teeth but problems with back ones. I need to be sedated for any procedure as its far too stressful for me. Last time I was at the dentist was a few years back,sedated for a broken tooth taken out.......caused by a...

Thank you ,good to see you all. I don't go anywhere much these days ,that photo was after I had been to sunday service....only time I get to get dressed up lol. Its my FB profile photo. Will try to pop in more when I can...busy week with my son, he has two hospital appointments this coming week...

No lifeenthusiast ,its not just you...well it is but "your" not odd... just pls odd

I am in my 16th/17th yr with PLS now,the early years I have to say were the hardest which I think is when you are overcoming all the changes to your disabilities. I have always noticed i'm worse when stressed or nervous and I do have to concentrate when walking... its not an auto pilot thing...

:) Its been a long time since I was here. Hope everyone is as well as they can be. The past year has been very difficult ,my son has been seriously ill and is still declining. Doctors thought Lymphoma but now suspect endocrine tumours. I have missed you all and promise to read and catch up when...

Baclofen causes cognitive dysfunction with long term usage...this has been the case with me.

Its been 6yrs and I still think of you and miss you so much del. Sleep well my dearest friend till we meet in paradise. All my love as always. caroline xxx

Al,your story sounds classic of a PLS onset and eventual diagnosed patient. The 1 man I mentioned was American and it was about 7yrs ago...was on another forum before I joined this one that Beky was on also. I started with really bad balance ,falling over like I had bad vertigo and dropping...

Al,i have known about that test for more than a decade. It can not be used to diagnose PLS as it only shows UMN involvement when there is significant disease severity...or after many years. I know of only 1 man who is very severely disabled who had the test and it showed up. They need to make...