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wow...so sorry to hear this...my thoughts are with you.

Hey Sharon, My dad technically did switch over to medicare 10 years ago. However he opted to go hand it over to kaiser medicare because he was used to them at the time. This is years before ALS was in the picture. Since ALS started his documentation showed that he medicare was the payer so I...

Hi Katie, I never could find the energy or time to go to member services for anything, but that's part of working the system. If I had learned to work that way I suspect things would have been easier. Maybe. If I had picked the brain of case managers I would have "gotten" the way things work...

It's pretty complicated, sorry if I am not being clear. The bottom line is that he does not have medicare at all, he only has Kaiser commercial coverage through my mom's employment. This means that I can't use any hospice agency and can only use the Kaiser run hospice. Now I see that...

I found a caregiver for $9 through a local ethnicity based non-profit organization. She's good with my dad...just not so good with the housework. I think maybe we were not clear enough with her in the start to state what we wanted from her so she doesn't see the housework as part of her...

Hello, When we first requested hospice, Kaiser (the insurance carrier) set us up with a hospice agency contracted through them. I was happy to hot have to deal with Kaiser for a change. This agency came in and did the nursing, social work, home health, md assessments (total of 10 hours) so...

Thanks all for your input. Even though I haven't turned to this site for support as much as I probably should have over the years, I know that there is always someone willing to help me through. If hospice is the only place I can turn for help with what is going on in this house, I need to...

My dad starting experiencing symptoms of what was later diagnosed with ALS in the summer of 2005. Since then it has been a long and difficult journey. Since February he has been having significant respiratory distress which has become worse in the last couple weeks. Among other things his...

My father has been experiencing the symptoms of ALS for 4 years and was diagnosed 2 years ago. We have watched the decline go from his legs onward. The disease began to significantly affect his diaphram 8 months ago. Currently he can't move an inch and can only make a sound or two. I can't...

Hello, It's been 3.5 years since my dad started noticing symptoms and about 1.5 years since he was officially diagnosed. At this point he is unable to use his legs and his arms. No need to outline the changing struggle for both he, and my mom and I who help take care of him, everyone here is...