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Hope you all had a Merry Christmas and I wish you the best for the New Year. I had a lovely one with my little ones and of course never the same with out Mom. :) The holiday did not seem that stressful, but yet this numbness and tingling in my forearms and hand continues to get worse. I mad a...

...while looking for some Rita McNeil tapes to play, I stumbled across a Rosary CD, I put it in the player and the beautiful music quietly filled the crisp morning air. I took one of her pretty white rosaries and put it in to Mom’s cool hand. We listened in silence to the music for about 20...

thank you to all on this forum for the suport. I when thru so much, the als symptoms myself, the scuba diving with sharks in the Bahamas. all with your help. And of course my mom's journey. I think she will die tonight. hope fully peacefully. She has fought such a noble fight. Her breathing...

Hi All! just got back from boating in the Bahama's! had a great time. Al, you are right I did not get eaten by a shark and got my open water diving certificate. it was lots of fun. while I was gone my aunt came to help with mom who had been planing to go to Yuma for a couple of weeks. The week...

I asked Mom today, "you have been on Lithium for almost 4 weeks have you noticed any difference?" expecting an answer like, I don't seem any weaker, she said "You know it's funny you should ask that, I could move my 2 fingers, and I think I moved a finger on this hand." as she looked down at it...

The ALS clinic forward this letter to me for mom today. apparently they had a Canada ALS center confrence call Monday on how to deal with it and start studys. She see's her GP tomorrow, Wish us luck! Feb 7, 2008 As you may be aware, a study has just been published demonstrating a positive...

I go for my EMGS on the 19th. My tongue is still weird but now I have a cold and my body the last 3 days is doing something new and weird. I feel little twings al over my body. There don't cramp, the don't viberate, it just feels like a tweak. I get one every little while, I am total freaked...

I was wondering whats going to come next for Mom, but because it is getting so hard to transfer her, especially for Dad at night, does a catheter make sense? How long can you keep one in?.

Are there many pals taking CoQ10? I googled it als and CoQ10 and it seems to help in mice, but in Parkinson studies if sugest a 40 persent increase in survial? Any on nuero suggestting it for them?

Mom's Neuroligist phoned today I was to see him for some emg's for my numb tinging cramping arms and swollen feeling tongue with difficulty swallowing. He say it's very uncommon for als to be herditary, and extremly rare when it has been originaly been diagnosed in some one over 40. Mom was 71...