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  1. Whitsend

    This just in

    By: News 14 Carolina Web StaffBy: WASHINGTON -- Sen. Kay Hagan's TREAT Act heads for the president's desk. The bipartisan legislation puts treatments for serious, rare and life-threatening diseases on the fast track. The bill gives the Food and Drug Administration better access to cutting...
  2. Whitsend

    A Note About Progression

    An acquaintance from clinic passed yesterday. She was diagnosed three months prior to me. When we met we were both at pretty much the same place in progression. Our disease started the same way. We were both about the same weight, although she was a few years older than me. If you are...
  3. Whitsend

    International Conference

    The ALS International Conference was this week in Sydney Australia. I expect we'll be hearing about a lot of new research and statuses of ongoing research in the next few weeks.
  4. Whitsend

    ROHO Seat Cushion

    My seat cushion was over two years old and was due to be replaced six months ago. I finally got it two days ago. At the time when it was ordered they didn't have any samples so I figured I knew the devil I got, but not the devil I could get. So, I told them just get me another one like what I...
  5. Whitsend

    Can't Remember?

    I can still remember how it felt to walk and run, how it felt to feed and dress myself. I can't remember what it felt like to turn over in bed. Some combination of hip and shoulder? What can't you remember how to do or what it felt like?
  6. Whitsend

    Interesting Article

    See link: http://www.charlotte.com/200/story/682338.html
  7. Whitsend

    New Drug Test

    The following was sent to me today from someone who works at this hospital. This is a test for spinal cord injury patients. You may say, 'What's that got to do with us?" Well, a lot. Most spinal cord injury patients take a drug for spasticity such a baclofin or xanaflex. Those are the same...
  8. Whitsend

    Web Site

    Here is a link (or just copy/paste to your address bar). http://www.asktheneurologist.com This is Ask the Neurologist. I haven't tried asking anything yet, but thought I'd pass it along. All I've done so far is look at the Spasticity presentation. Has anyone ever heard of using Botox?
  9. Whitsend

    Question for Raymond B / Another Test

    Hi everyone. Just got back from Duke Medical Center yesterday. They want to do another test. I just don't remember the name and was hoping someone here could help so I can find more info on it. They put electrodes on your head, wrists and ankles. The shocks, unlike the EMG, come in rapid...
  10. Whitsend

    Coping Techniques

    Not emotional. Physical. Does anyone have as much trouble as I do getting into bed and turning over in bed? It is such a struggle. Scrunch, scrunch, wiggle, wiggle, pull, push, scrunch some more. And as much as I love him, having hubby in bed just adds to the struggle. Has anyone figured...
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