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  1. Jb72796

    Respiratory ALS?

    Well, I’ve ruled out everything else and asthma meds don’t work. I have these ongoing breathing issues for 3 years and last year it got so much worse. I can no longer produce a strong cough, AT ALL! I had asthma as a child and know how that feels. Also have took every test known to man for...
  2. Jb72796

    Respiratory ALS?

    I’m back here again because there are other ALS forums that say EMG can miss even respiratory onset ALS. There was several testimonies of people’s EMG’s and breathing tests being normal and eventually being diagnosed with ALS. They didn’t have many other symptoms. Is this truly accurate, if so...
  3. Jb72796

    Respiratory ALS?

    Specially a PFT?
  4. Jb72796

    Respiratory ALS?

    Hello, I’ve had an EMG in February and it was only on my legs and arms. My question is, I have horrible breathing and back then the doctor said it’s not ALS but my breathing and ability to get a deep breath and cough is actually getting much worse and I’m currently in the hospital. Now all my...
  5. Jb72796

    Possible Respiratory onset ALS?

    Sorry I mean the NCS, and also he meant like nerve inflammation you would see in carpal tunnel or people who work on computers. Everything else seemed normal to him and he said it doesn’t point to an MND’s
  6. Jb72796

    Possible Respiratory onset ALS?

    So the most recent EMG showed mild inflammation of the arms and hands. But nothing else, he said it looked normal. What does that mean to you?
  7. Jb72796

    Possible Respiratory onset ALS?

    Well, the key is my breathing was like this prior to covid for last 3 years. So that’s where the confusion sets in and now it does feel terminal. I wish it was purely covid, but sadly I don’t think so.
  8. Jb72796

    Possible Respiratory onset ALS?

    Having tons of trouble inhaling air and gathering strength to cough. This is miserable. I’m hope my most recent EMG is ok. I’m also seeing muscle weakness in my hands, that has been present from summer last year. This is getting worse, I don’t have pulmonary issues and I can’t understand why I...
  9. Jb72796

    Possible Respiratory onset ALS?

    What in my thread makes you say most likely not ALS? I also have widespread twitching and stiff neck muscles. MND’s run in my family (Parkinson’s) You’re right it would be too much, but I’ve been through so much this year and I can’t find an answer to why my breathing is getting worse and worse...
  10. Jb72796

    Possible Respiratory onset ALS?

    I’m John and I’m 34 years old and I have had some breathing issues for at least the last 3 years. I seemed to have trouble getting a deep breath. It would come and go in flares. I then caught covid last March and my breathing is now much worse. I’ve also been diagnosed with Ehlers Danlos...
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