Search results for query: *

  • Users: AniSk
  • Content: Threads
  • Order by date
  1. A

    Method of genetic testing

    There was a discussion on a FALS Facebook group regarding genetic testing and using blood draw vs. cheek swab. Many were questioning the reliability of cheek swab to produce accurate results- citing the possibility of false negative. I’m going to be tested soon through research at Columbia and...
  2. A

    Last minute considerations before testing

    I met today with the genetic counselor and neurologist at Columbia for a pre-testing session, as part of the ALS Families Project. I’ve been in the study for a few years now but with undisclosed results. I’ve pretty much decided that I’d rather know at this point, than deal with the uncertainty...
  3. A

    Exercise as a risk factor for C9 ALS

    I came across this article regarding exercise and risk of earlier onset for those with C9 gene. My dad had C9 ALS and we are both runners. We trained and ran NYC marathon together in 2004. When he was diagnosed in 2017 we were running together again but shorter distances. My family and I first...
Back
Top