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Thank you for replying Shiftkicker. It is especially kind of you to take the time - I asked for those who were not current PALS or CALS to engage since I was wary about both the blunt nature of some parts of my post and placing a demand on those already coping with much. All I can say in...

I just wanted to add: in my last thread a moderator posted a rather hurtful message accusing me of being deluded about my condition and sharing falsehoods about ALS. I was taken aback by this, not just because I am certainly not exaggerating my symptoms, as they suggested, but also because I...

Hi there, I hope you are well and thanks again for those of you who take the time out of your days to answer questions on here - it's very kind of you. Because of the nature of this question I'd be grateful if only those who are not current caregivers or PALS would answer, since I do not want...

J. I hope you're well. I appreciate you may have taken a break from the forum, but if you get this: did you ever get a diagnosis? I have a 2-3yr history of symptoms v similar to yours. Some docs think possible ALS, others think no. Clean EMGs but fasciculations and progressive weakness and...

Hi McBee, I hope you're well. I just wanted to second the advice to seek evaluation for a connective tissue disorder e.g. Ehlers Danlos. EDS sufferers present with many of your symptoms and can often have abnormal EMGs too. With your hypermobility, it is a real possibility and obviously far...

Thanks for your reply and well wishes. It has certainly been a difficult few years, and I hope that the expert gives me good news and that ALS can finally be ruled out for me too. The difficulty I have is simply that all the mimics have at this point been ruled out and there are no other obvious...

Thank you for replying, Nikki, and I hope you're well. Can I take from this that you still don't think that I have ALS? It seems I'm in an awkward situation where despite the online consensus from my first post being that I didn't have ALS, the ruling out of mimics and the progression of...

Hi there, As per the mod's request, I'm providing an update on my situation - previous thread here: Could this be ALS? 25m - after having just had another EMG. If you look at my previous thread you will see that I have been suffering from constant, all-over-body fasciculations accompanied by...

Hi mddarr, I know it's been a while since you last logged on but did you ever find out what the cause of your symptoms was? Flex

Hi Jas, I've just seen your thread and you share quite a few symptoms with me? I'm a young man whose symptoms began with a sudden loss of ability to burp immediately followed by hundreds of weird microburp things a day. I then began having difficulty swallowing and developed all over body muscle...