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  • Users: jean p
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  1. J

    Visitation question

    Hello all: My brother was diagnosed with ALS in 2020 when he was 57. Sadly, he went from running a successful business to now being bedbound, unable to walk, talk, eat. We have tried many ways to communicate with him, we also set up an Eyegaze monitor and worked with an occupational therapist to...
  2. J

    Toxic Chemical Test

    My brother was diagnosed with ALS in 2020. He has been on radicava/riluzole for a year. He recently started seeing a naturopathy doctor who tested his urine via Great Plains Labs. He was off the charts for 2,4-Dichlorophenoxyacetic Acid (2,4-D), a chemical in weed killer/GMOs. He is going...
  3. J

    Parkinson's meds for ALS?

    Hi! My brother was diagnosed with ALS last Jan, right before the shutdown. His neurologist put him on Riluzole. Another doctor within the same group diagnosed him with ALS/PSP and put him on Carbidopa/Levodopa. He has also been on Radicava for about a year. Now the first doctor is saying he...
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