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My husband has bacterial pneumonia. He was looking better, but has taken a turn for the worse. I have been non stop nursing him for 4 days. He told me today on his phone that he is done. I am in dispair.. yet do not want him to suffer either. Today was rough, his family, who have never even...

I am now feeling the tick tock of the als clock. My husband is declining. He is getting set up to do MAID in the next few months. I am having more issues than he is. He is actually happy now. I suppose because there is an off ramp before he loses his dignity . He says he naturally is afraid...

Hi my husband had his peg placed yesterday afternoon. Hospital sent us home with the wrong syringes to fit his port. I went to do a flush as instructed and the tip on the syringe would not fit the port. His port has inside threads. I had a crying fit, then threw on 2 n95's and went to the ER...

Hi everyone, my husband has had bulbar onset since June 2020. He is 1 week from a g tube, and all of a sudden he doesn't like the blended food I have been feeding him for months. I switch things up, but I am noticing he is leaving half, and doesn't look like he is enjoying. He says things just...

My husband has had bulbar onset als since Oct 2020, finally diagnosed 2/2022. He has always been so sweet, now he is mean to me. Is this common? I know he is so depressed. He is going downhill now, and is angry. I cry so much now. I do not know what to do. I just try to be invisible.

I hope I'm not violating any rules here, I am not thinking clearly, as my husband was just diagnosed by a specialist today. He took the news better than I did, I have been crying most of the day. He has bulbar onset, can no longer speak that is understandable, is bothered by drooling, and has...

My husband has been slurring his words, coughing, and choking. The speech he noticed in July, I didn't notice it until October. It is not so bad in the morning. He has no weakness in any limbs, just face throat, and mouth. No muscle twitching anywhere. Does bulbar eventually spread to the limbs...