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Thank you all for your replies. I am also in the early stages of this diagnosis....I was being treated for MS for the last 3 years and I was chalking my ribcage issues up to the "hug" that is common with people who have MS. Mine feels as though someone has put an old fashioned corset on me and...

Hey...wondering how many of you are dealing with ribcage spasticity? I have a PLS diagnosis and I deal with a lot of spasticity.....most of it in my legs but more and more struggling with my ribcage as well. I am taking baclofen (20 mg) which works pretty good at night but is too sedating for...

I also have PLS and was diagnosed (finally) at Johns Hopkins after seeing 3 other neuros. I have been happy with my care thus far.....I live in North East PA so it is a bit of a hike for me to get there. Docs are pretty responsive through their portal. Best of luck to you.

Thank you all for the feedback and information. My Dr. has prescribed the Riluzole in the hopes of slowing the progression. He did tell me I would die with PLS but likely not from PLS. Comforting in a way but I am already having swallowing issues and significant balance problems that are...

Hey....wondering if anyone out there has a baclofen pump. I am a PLS patient and I have been using Baclofen to control muscle spasticity for about 2 years now. I am finding it increasing difficult to manage my symptoms particularly at night. My neurologist has mentioned the pump as a possible...

Nikki, Thank you for the information....it was helpful. I am being treated at Johns Hopkins so I feel like a I am getting neurologists that are top in their field. My Dr. is hoping that the Riluzole will slow the progression of my symptoms. I have noticed that my balance/coordination are a...

Thank you.....I will look for the old posts. Yes....they are thinking that because the symptoms started at least 5 years ago it is most likely PLS. They have put me on Riluzole to slow progression. There is not much out there on PLS. I am glad to have found this site. Just trying to learn as...

I have been having neurological issues for about 4 years. It started with weakness in one leg and a drop foot that we thought was related to a back injury. A short time later I began having muscle spasms in my legs and ribcage that woke me up almost every night and balance issues. I have seen...