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  1. J

    Communication for bad spellers

    When my husband is not using his computer..i have sheets of paper with 6 big blocks marked off and numbered..then i put key words in the blocks and all he has to say or mouth is the number..also i have a sheet with the alaphbet on it and i point to lines with 4 or 5 letters so i know he wants...
  2. J

    feeling Low

    Hello everyone..We all seem to be in the same boat at diffrent stages..What happend to our happy normal life...I just cant believe how hard life has come to be for my pals and I..It's just too sad..then i wonder how much more can we take..he cant eat, talk,hug,move his hands arms or legs ..i use...
  3. J

    Feeling hopeless/helpless/useless

    Hi..I'm so sorry you are going through all this..and I do know how you are feeling..Is your husband a Veteran by any chance...the VA has been so wonderful to us..anything..and I mean anything we have needed, they have come through with..A wheelchair that wheels over the potty, another one that...
  4. J

    choking

    Thank you for responding..he isnt loosing weigh yet..seems to be just the beginning of yet another "challege" as we call them around here...We were going to an ALS Clinic in St Pete..but now have changed over the the VA..wow..they have really been great about giving us just about anything he...
  5. J

    choking

    Hi Everyone..it's been awhile since i've posted anything, but I do visit and read everything I can..anyway..My husband's ALS seems to be progressing pretty quickly now..he has very limited use of arms/hands..can still get a sandwich or his fork to his mouth..but he has to really think about...
  6. J

    new

    Thanks Sherry Hi Sherry...thank you for your response and your words of support and prayers! We do have a wonderful support group of family and friends. It also helps that Gary has a great head on his shoulders, he never complains or gets ugly and seems only to be thinking of ways to make...
  7. J

    new

    :Hi All..I'm new to this..but here goes..My husband Gary has ALS, was diagnosed Jan of 06..We both retired about 6 years ago and we moved out of our townhouse into a motorhome and traveled full time all over the US and little in Canada. Last Feb we had to move out of the motorhome and into a...
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