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  1. PamP

    Hi Sun Gadolinium toxicity, this is the contrast dye they use during mri, i didnt have...

    Hi Sun Gadolinium toxicity, this is the contrast dye they use during mri, i didnt have twitching before, only after. my muscles are wasting away rapidly, i have a hollow in my right arm where the muscles disappeared.. feel like im getting weaker and weaker, ive lost nearly 10 kg! and become...
  2. PamP

    whats criteria is needed for an ALS diagnosis exactly?

    Contrast dye is a rare earth toxic metal, not a "dye" at all. it is known to interfere with neurons, settle in bones and brain. it is known that heavy metals are a cause of ALS according to Ammer El Chalabi, he mentioned something about this at a meet he did a few years ago..its also been...
  3. PamP

    whats criteria is needed for an ALS diagnosis exactly?

    Hi all and Happy valentines Day! Maybe someone has a similar experience... It started off with wasting on my right hip and lower back, i had 2 Mri's in november about 2 or 3 weeks apart with dotavision, then dotarem, soon after my fasciculations started. ( id had a bad fall last March on some...
  4. PamP

    I noticed that my twitches started around the same time as mri with contrast, i had 2 in one...

    I noticed that my twitches started around the same time as mri with contrast, i had 2 in one month! November. Now i have pain all over my body, esp. When lying flat and shortness of breath. The pain started in my hip bone and top of thigh at the back with muscle wasting, but after the MRI 's...
  5. PamP

    whats criteria is needed for an ALS diagnosis exactly?

    Ok, that makes things clearer🙂 thankyou.
  6. PamP

    whats criteria is needed for an ALS diagnosis exactly?

    Surely they would say there's a "possibility" rather than a definitive no...or do i really have to wait till i cant lift my right leg or something. What im trying also to find out is if a high radioactive scan would be bad if i were to have Als, does anyone know? I havent said i dont trust...
  7. PamP

    whats criteria is needed for an ALS diagnosis exactly?

    Well the odd thing is, my doctors dont think i need it, they're only offering it as i keep persisting trying to find out whats wrong as i havent been given any answers, plus its a big dose of radiation and if it turns out i do have very very early ALS, would it damage the nerves/muscles even...
  8. PamP

    whats criteria is needed for an ALS diagnosis exactly?

    Hi, im new here, not diagnosed officially, but am in my mid 40's, a stressed mum of 2 young kids. I started to get fasciculations months ago, after i noticed fat disappearing over my right hipand lower back, then my muscles on my bum and back of right leg started to feel smaller/thinner. I went...
  9. PamP

    whats criteria is needed for an ALS diagnosis exactly?

    yes, thankyou so much Nikki for listening, my doctor doesn't think i should have the bone scan ...that its 'not needed', but at the same time none of them are offering a diagnosis either. The orthopoedic surgeon also says its "up to me", doesn't think i need i. Im British and i find the...
  10. PamP

    whats criteria is needed for an ALS diagnosis exactly?

    so if id had it before the fall, do you think it definitely would show on the Emg and would they 'not' tell me yet and wait to see if i end up going back with weakness at at later date, as they need certain criteria to diagnose?..None of the other doctors seem to be able to tell me why my butt /...
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