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Hi folks. My beloved husband, Roger, lost his battle with ALS on May 10th. He was cremated on May 14th, which was the ONE YEAR anniversary of receiving the diagnosis. This disease is just about the worst thing I can imagine. And I'm still in a bit of disbelief that he's gone. I'm...

Hi everyone. Life has been so crazy that I've only been able to scan the posts. I have been educated, inspired, and comforted by many of your posts. But I have a few moments of quiet and decided to write. Mostly just random thoughts and reflections. My husband was diagnosed on May 14, 2020...

Hi everyone. I am looking for advice on what sort of gadget to use for getting the hoyer sling behind my husband's back when he's in bed. (I searched the forum, but I may not be using correct search terms.) My husband is now in hospice and this cruel disease is progressing so fast. (He was...

Hello everyone. My husband was diagnosed with ALS in May, 2020. The progression is fast. His SVC test result dropped to 40% (as of 12/11/20) from 72% in September, 2020. (We were doing screening for admission into an experimental drug trial, but the screening was halted due to the low...

Hello everyone. I just found this forum and it's a relief to see so many of you out there. But I am sorry there are so many of us out there. My husband was diagnosed with ALS in May, 2020 at age 61. He ran a marathon in October, 2019 and another in December, 2019. Watching the steady march...