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your validation and support mean a lot to me. deep thanks!

Thanks, Mon. yeah, I treasure my mornings. My arms and shoulders are pretty weak but the worst is my neck and spine. I started with bulbar involvement--voice, breathing, and they said I had bulbar onset als. but I'm at 3 yrs post onset. Before this I had rheumatoid arthritis and osteoporosis so...

I'm sorry for the abundance of horror. does it help you to be active here? it seems like there are so many people wanting to be relieved that they don't have ALS. a little hard to take. I feel so so so much weaker in the evening. is it like that for you? Lena

ya, quite a club! it's good to meet you, Nikki, I've read some of your posts, very helpful. glad your progression is slow. weird how many different manifestations there are. I may have had it long before obvious symptoms. I was a dancer but also disabled with rheumatoid arthritis, so I have a...

Hey, I'm not seeing much here on PMA. I have voice and spine and respiratory involvement, misdiagnosed as Bulbar Onset ALS, then PMA in November 2020. Progress seems relentless; though I remain coordinated I am barely able to stand and can hardly talk. It started with twitching and ridiculous...