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  • Users: Elo
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  1. E

    husband passed away

    Hello Everyone, haven't posted in about a year, but just wanted you all to know that my husband passed away today. He fought a brave fight but the illness finally took over. He was diagnosed mid 2005. Progression was slow in the beginning but sped up after diagnosis. Symptoms started in 2002. He...
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    re Doctor's visits, mobility head, index and thumb fingers

    Hi everyone, has anyone tried any doctors making house calls? Could anyone please advise where I could get a list of doctors making house calls, as my husband needs medication on a daily basis prescribed by a family doctor. We are in the Mississauga area. it is getting very dificult for my...
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    New Developments re ALS

    Hello Everyone, just wondered if everyone saw this: http://news.bbc.co.uk/2/hi/health/6144908.stm I found it quite interesting, Elo Also this one from May 2005, from the ALSA organization: http://www.alsa.org/news/article.cfm?id=644
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    burning sensation during sleep

    My husband is experiencing a burning tingling sensation in his lower back and all over his legs, today. Could it be that bedsores are on their way? Not the fasiculations he experienced earlier when diagnosed, he was diagnosed middle of last year. He doesn't sleep on his back. He has been taking...
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    Tracking Thread on Pennicillin

    Can someone tell me how to track a thread I sent out on neurologist suggesting Pennicillin, found it a few days ago, but is not there now, could it be deleted, thanks. How do I know that something will be deleted? thanks for your help. Elo
  6. E

    Do you find Personal Care Workers Help to make the care of a loved one easier

    I have been told by husband's Physiotherapist and Occ. Therapist that I need to have a personal care worker come in to give me a hand. My husband and I are reluctant. Has anyone found that this has helped them. My husband needs help getting up to a sitting position and I need to move him around...
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    Motorized wheelchair

    Does anyone know when the right time is to get a motorized wheelchair? Do you also know if a middle drive has more advantages over a rear drive
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    ALS dizziness and dizzy spells - loss of balance

    Hi everyone, my husband has developed dizzy spells whenever he lies down, and when he gets up to a sitting position, he said he feels as though the bed is spinning. It is so bad that I have to help him back to a sitting position, when he tries to lie down and this happens. Just wondered if...
  9. E

    Stairs and stairlift for people with als

    My husband will get a stairlift in 4 weeks. In the meantime bedrooms and washrooms are upstairs and he gets upset if I cannot help him up 14 stairs every night, he is wheelchair bound. I feel very guilty when I cannot help him but I think it is very unsafe for him, and my right leg and arms are...
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    New member with questions

    I am new to this site and would love to see how other members are coping. My husband was diagnosed with ALS last year, even though he had symptoms for about 4 years. He has lost practically all the muscles in his legs and can barely move around now. The weakness is also in his arms back and...
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