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Thanks, everyone. my initial presentation was classic CMT. I may still have that, but my symptoms have changed. My upper neurons are most definitely involved now. It’s incontrovertible. They were not involved when the neurologist did his full workup two years ago. My CMT is type 2, axonal. It...

I was diagnosed with Charcot-Marie-Tooth two years ago. Last Friday, my doctor wanted to know if I wanted her to write a prescription for a wheelchair. I said no. I try to walk as little as possible, and I have walkers. CMT is supposed to be slowly progressive. NOT. My proximal muscles are...