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Hello everyone, I have posted couple of times here and my old thread is not open for replies. I have been having: Body-wide fasciculations Difficulty breathing especially when leaning forward or when swimming Issues with speech where I put words in the wrong order, use the wrong words or...

Hello All, I am 32M. I was diagnosed with BFS over 1.5 year ago. I am looked after by an ALS specialist and I had 4 EMGs carried out, all were normal except fasciculations. Reflexes are brisk, but "not pathological. " The ALS specialist is not worried, but the raised CK is "bugging him" and he...

I am sorry for posting again, and dear community, please don’t be upset with me. I wanted to write a quick update on how I am, and see if any of you could perhaps advise on what I should do next.

I am back here in the hope that somebody could advise me on what to do and share your thoughts on my situation. I appreciate your guidance a lot. I will be brief. My problem started with leg weakness which took me to ER 3 months ago. This caused a panic attack, and had the worst migraine of my...

Dear All, About 4 weeks ago I went for a gym class and I noted that my legs felt a lot weaker than usual. I normally can do a wall sit for at least a minute but after 20 seconds I dropped to the floor with wobbling legs. I remember saying to my colleagues after for a few days that my legs felt...