Search results for query: *

Hello everyone, I have posted couple of times here and my old thread is not open for replies. I have been having: Body-wide fasciculations Difficulty breathing especially when leaning forward or when swimming Issues with speech where I put words in the wrong order, use the wrong words or...

Sorry Niki, are you saying word finding for ALS is a “NO”?

Hi there all, I have just been on a holiday with family, and they (and I) noted that I have a trouble putting words in the correct order. I also frequently find it difficult to find the correct words for things. In addition they often found it difficult to understand to what I am saying, as...

Hello all, As promised I return after meeting with my neurologist and after reviewing test results together, this is so if anyone followed my posts, or will read them in the future, will see the end result. In respect of others, I will keep it short. My CK levels returned to normal 220...

I had respiratory muscle strength assessment which came back within the normal range, including MEP and MIP. There was a 10% drop since last year, but the pulmonologist is not worried. Because of the positive histamine provocation test, he gave me an inhaler to try first, and if that doesn’t...

Hello All, I am 32M. I was diagnosed with BFS over 1.5 year ago. I am looked after by an ALS specialist and I had 4 EMGs carried out, all were normal except fasciculations. Reflexes are brisk, but "not pathological. " The ALS specialist is not worried, but the raised CK is "bugging him" and he...

Hello Shiftkicker, I do really appreciate your answer. Thank you for taking the time. I am relatively calm about the situation. I do 60 minutes meditation every day as well as breathing exercises to manage my anxiety. I also do some form of exercise every day. Nevertheless I am suffering due...

I am sorry for posting again, and dear community, please don’t be upset with me. I wanted to write a quick update on how I am, and see if any of you could perhaps advise on what I should do next. A brief summary of what happened so far: -8 months of bodywide twitches. Sometimes large twitches...

I am sorry for posting again, and dear community, please don’t be upset with me. I wanted to write a quick update on how I am, and see if any of you could perhaps advise on what I should do next.

I am back here in the hope that somebody could advise me on what to do and share your thoughts on my situation. I appreciate your guidance a lot. I will be brief. My problem started with leg weakness which took me to ER 3 months ago. This caused a panic attack, and had the worst migraine of my...