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  1. W

    Hi, I still believe I have mnd/als, I've got jaw jerks, esophageal spasms, awful throat mucus...

    Hi, I still believe I have mnd/als, I've got jaw jerks, esophageal spasms, awful throat mucus (no infection), constant nose blowing after eating, drinking, or moving too much and hyper metabolism so I'm slowly loosing weight, I have to eat twice the amount of food, to maintain weight. The hip is...
  2. W

    Hi Kiki, my emg was negative, but that doesn't mean much. I still have nerve to muscle function...

    Hi Kiki, my emg was negative, but that doesn't mean much. I still have nerve to muscle function, but my hip replacement which initially healed has atrophied. An MRI confirmed this and the surgeon hasn't seen that pattern before. I've got autonomic dysfunction also, which can go with als/mnd. My...
  3. W

    Hi Kiki, my EMG tests are tomorrow. Sorry to hear that your swallowing is getting worse. Did you...

    Hi Kiki, my EMG tests are tomorrow. Sorry to hear that your swallowing is getting worse. Did you have EMG tests done? I have to go back on Thurs to get the results. They are going to test my atrophied hip. will let you know results. Kind regards, Lesley
  4. W

    It is very hard to wait, anxious and depressing. Sorry to hear about your swallowing getting...

    It is very hard to wait, anxious and depressing. Sorry to hear about your swallowing getting worse. How is your speech? My other hip has now started to atrophy, it's going the same way as my hip replacement did. They're sore sitting down like skin on bone. I can still walk though. Kind regards...
  5. W

    Thanks, I'm having a spirometry test next Monday which does this. Have you had EMG testing, what...

    Thanks, I'm having a spirometry test next Monday which does this. Have you had EMG testing, what did it show? Kind regards, WM
  6. W

    Thank you, Emg tests on 29th March. I loads of thick throat mucus and runny nose after eating...

    Thank you, Emg tests on 29th March. I loads of thick throat mucus and runny nose after eating and exercise, plus some breathing issues when tired. It scares me how this will end up when things progress. Am sure it's ALS/MND. Do you have these as well? Kind regards, WM
  7. W

    Hi Kiki, thanks for your reply. What symptoms do you have, are any of them autoimmune? I do...

    Hi Kiki, thanks for your reply. What symptoms do you have, are any of them autoimmune? I do get occasional cramps in my feet and legs, but so far my speech and swallow are ok. Sometimes swallowing is more difficult. I sometimes get esophageal spasms which are painful and jaw jerks/spasms. I...
  8. W

    Bulbar symptoms/Hip atrophy

    Hi, yes I have changed my status now. I have an atypical onset which is very slow, I've had some one one symptom for many years and that's the thick throat mucus, which had increased over the last 9 months so lots of throat clearing. This is not from allergy, I've been tested. Many of my...
  9. W

    Bulbar symptoms/Hip atrophy

    Hi, I started with the ocassional jaw jerk, esophageal spasms and throat mucus about 18 months ago, but thought nothing of it. In June 2020 I suddenly developed hot hands and body temperature dysregulation. I was biting my mouth and having to be careful how I ate. In August 2020, I had a total...
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