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I would be curious to hear your thoughts Nikki? You have a lot of science knowledge and I respect your opinion.

It will reopen that spot. I would dropout before the trial start date. I haven't even signed the consent form yet. I've just been guaranteed the spot from a phone screening.

Thank you lgelb for your response. No lie here, my primary objective is to get lucky with a trial therapy that slows my progression. Of course, it is also a duty to contribute to data that may help others in the future. I forgot to mention that with the stem cell trial I will have to cease my...

I am trying to decide between the Healey Platform Trial and the Phase 2 Adipose Derived Mesenchymal Stem Cell Trial at Mayo. I have already been screened and gotten into the Mayo trial. But I can opt out of that sill and get into Healey. I am bulbar onset, diagnosed last year, sporadic, ALSFR...

Again, thanks to everyone who commented on my Newly Diagnosed thread. Although I haven't posted much yet, I've been reading a lot and learning and gleaming inspiration. This week my goal is to get on those recordings. Thank you everyone for the urgent suggestion. I think I'm still in the...

Wow, I'm blown away by the support and positivity here already. I'm really glad I introduced myself. Today was a rough morning filled with sadness as my wife and I still grappled with what will not be. Plus, a meeting with my lawyer to discuss some potential issues with my life insurance policy...

I'm a 39 year old father of a beautiful 16 month old little girl and the husband to a beautiful and pregnant wife (another girl on the way). My fears started back in May (2020) when I returned to my job from quarantine. I own a personal training studio and train clients as well. My speech seemed...