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    Caregiver focus groups

    i don't see any links to the focus groups. how does someone participate?
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    Teeth Grinding

    Yes, i have had teeth grinding and in fact my teeth are moving and becoming visibly crooked. I have a number of amalgam fillings so i am concerned about mercury gas release especially with the nighttime grinding. I have learned that amalgam fillings are at least 50% mercury. The fillings can...
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    als clinics

    I do both. Also I am using a functional medicine physician for primary care.
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    Just diagnosed

    <link that includes solicitation of donations removed> I have gotten the best help for my ALS journey from this free website and its affiliated support groups that meet via zoom. I am also seen in Tampa, but they use only conventional practices. For more broad minded treatments you have to look...
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    Fear or courage ?

    I found this statement to be eye-opening. “Fear never wrote a symphony or a poem, never negotiated a peace treaty, never cured a disease. Fear never pulled a family out of poverty or a country out of bigotry – it never saved a marriage or a business. Courage did that, faith did that. But fear...
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    Mom just diagnosed ALS, need hope

    I am a PALS , a woman about the age of your mother. I was diagnosed with Bulbar onset Sept 2020. I have found great hope and I expect to survive and thrive. I'm not sure this forum is the place to go into detail, but feel free to look for Cathy's ALS Team on Facebook if you want to connect...
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    exchanging experiences with bulbar onset ALS

    I also have bulbar onset. I am feeling great. My speech suffers badly. Swallowing is tricky. I get great support from a very positive and hopeful group of PALs and CALS that holds multiple Zoom meetings weekly. <donation-based site reference removed> I suggest you support your father's positive...
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    Any tube diets that you can try prior to PEG?

    i have recently started drinking Kate Farms also. I'm doing this to help me with nutrition, not because I'm considering a peg anytime soon. I also like the chocolate one, but I don't think it is considered complete nutrition. If you were doing tube feeding you might need a different one of the...
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    ALS and Toxicity

    Laurie Dr. Richard Bedlack from Duke University has confirmed 41 ALS reversals. He is researching them to see what they have in common. Many of them used a naturopath/ alternative physician's help, supplements, nutrition, and a positive mind-body connection to hope for their healing. To me the...
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    ALS and Toxicity

    I whole-heartedly support integrative medicine. I am pursuing the same route with tests for toxic exposure and the remedy. I'm just beginning this path myself. I say reject those who have negative remarks about holistic or non-traditional practitioners. Traditional medicine has nothing of...
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