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I have a HOY-ADVANCE-E - Electric Patient Lift - 340 lb Capacity and split leg sling for sail. I bought it in 2021, but luckily, we didn’t need to use it until summer 2022. I paid $2800 for the lift and several hundred for the sling. Asking $1500 for the two together. I live in MS; so not...

Hi Laurie - thank you for the thorough response. I’m sorry I’m so delayed in responding to you. Before we could get into the LTAC (due to no beds), he passed away, February 10. He was still trying to decide on a trach, and leaning heavily against it. After a week in the ICU, I strongly...

Timothy is in the hospital for the third time since November, second time since mid January. He has phlegm build up that stays for the most part in his throat. The cough assist doesn’t work for him. The percussion vest helps some, but not enough. He’s on multiple nebulizers. We suction, we...

I’m guessing some of y’all have seen this article. I know it’s extremely early and potentially a waste of time and money, but … at this point …. https://share.newsbreak.com/2mssa09p Do any of you know if this probiotic is available? One thing I found said not commercially available, but I...

Hi - general question. Once my husband was diagnosed with ALS, numerous friends and family members send all sorts of “miracle cure” posts, ideas, suggestions. How do you deal with this? It makes me really angry in one sense. I don’t have spare time to do the research they didn’t bother...

I apologize in advance. The search engine seems to be having issues; so if there are already threads on this, I couldn’t find them. We just went to the ALS Clinic in Houston, TX. My husband’s FVC is now at 27%. I’m trying to get an understanding of what this means in his progression. He...

Hi All, What is the benefit of a hospital bed over an adjustable bed? My husband has decided he does not want to do a trach. He currently is thinking about a PEG, but doesn’t “need” it yet. His upper body is where the ALS has presented first, which means his breathing is declining...

Hi All, I’ve posted a couple of times and truly appreciate the quick, relevant, well thought out feedback I’ve been given. I also read a lot of your posts, and as much as it breaks my heart to see so many suffering, I find strength in your strength and courage. My husband was diagnosed with...

My pALS was diagnosed August 31, 2020. In October 2020, he was at 95%. December 2020, 88%. February 2021, 79%. In May 2021, his PFT was 64%. Last week, he was at 47%. All that to say, this is progressing so so fast. He doesn’t feel like he’s short of breath, but he did a sleep study after...

Hi - as we are navigating this disease and its progression, I’m starting to worry about how does my husband get help if something happens to me. Last night, he slid to the floor as we tried to get him into bed (his upper body has almost no function, but his legs have been fairly strong). I...