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Kathy passed away today around noon. She battled ALS for two years...mourning each loss but quickly adapting to it through the help of her loving husband, wonderful friends, and the technology that allows it to happen. She had progressed very rapidly the last couple weeks and after a rocky...

Well, I found out last Wednesday that my sister signed up for Hospice Care (at home). She now is on oxygen most of the time, has a hospice nurse come in for care and information, and has a "comfort care" kit (morphine and other meds). A nurse friend of mine told me that generally hospice...

It's been so long since I've posted...so long that when I glanced through the various recent postings, there were so many new names that I don't know...but I know there may be some of you out there who might remember me. My sister, Kathy, was diagnosed in Feb of 2006. She now has a home health...

Does anyone else out there have nasty coughing attacks? My sister gets a little tickle in her throat and then has a "coughing attack" where her nose runs, eyes water, mouth salivates...very scary to watch...she tries to calm herself during these so that she doesn't breathe in some phlegm or...

My sister is debating whether or not to get a feeding tube. Can anyone out there give us/her advice? What the quality of life like with the tube versus without? How is your energy with versus without? Do any of you with a feeding tube wish you hadn't gotten one? Do any of you without a...

Hey there! It's been a long time since I've posted, but I had to tell you all about the trip my family took with my sister and her husband. We flew out to San Francisco and then drove north to see the redwoods. It was wonderful! My sister has been diagnosed for a little over a year now. She...

We're traveling with my sister & her husband to San Francisco & northern California the last week in March. (gotta love spring break!) I read something about a beach wheelchair that we can rent. Has anyone out there ever used one? How well does it work? Also, we're going to northern...

Sorry it's been such a long time since I've posted, but with school starting up and the walk just last weekend, it's been nuts around here! Last Saturday (Sept 30th) was the Walk to D'Feet ALS in Minneapolis. Our team, Kathy's Circle, raised over $7000. It was an absolutely gorgeous day and...

I'm not sure if it's okay to post fundraisers for just a person, but I figured I'd try. If it's not okay, I'm assuming the moderators of the site will delete this...which is fine with me...just please send me a personal message. First of all, I'm captain of the team, Kathy's Circle, and...

Good evening everyone! This goes out to mainly those PALS out there that wear glasses. My sister, Kathy, wears them and is considering getting Lasik done so that she won't have to have someone else put her glasses on for her. BUT since her eyes are naturally on the dry side, the doc she spoke...