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Hi Laurie. i did visit Australia at Christmas. I’ve often wondered. The Ache travels from jaw to legs. I keep reading there is no pain with early symptoms of ALS and then the opposite. it’s just a worrying time.

Hi All. An update on my present ongoing situation. I saw a Rheumatologist who looked at my weak ankle and wants me to have an EMG in the 5th Oct. I ache every day with fasiculations. mostly legs and buttocks, thighs. It’s a dull ache. my neck at the back is also painful to turn my head. That...

Ok. I understand. I’m just not getting better. The Rheumatologist didn’t really do a lot other than check reflexes and the same tests my GP did. it wasn’t really what I expected. I think she needed to be seen to get to the EMG test. I don’t understand why my jaw and neck muscles are aching...

Hi all. my symptoms are a little worse from my last post. I have a weak ankle (can’t walk on heel). Right foot after waking with very stiff shin 7 weeks ago. My legs ache in the day. Mainly thighs and inner thighs near knees and my feet feel cold. I have small twitches mainly both legs and...

Hi Railroad. could you explain the muscle aches. mine are worse when I wake up...stiff limbs and then they ache all day...dull. The skin feels sore to touch sometimes like a skin burn especially on the arms.

Hello Tycoon...did you see a doctor.?..I have the same problem with right foot after twitches and muscle aches for 3 months. my muscles seem sore and ache on both legs and arms.

Thanks for the quick reply. my CK came back as normal. I’m seeing a Rheumatologist this week. perhaps a neurologist would have been more ideal but they are hard to get at the moment in the U.K.

Hello all, I hope you don’t mind me putting forward my symptoms. It started last year with a stiff jaw and full ears. it went away and then in March this year it came back. Very painful both sides. Then one day I noticed eye twitches which progressed to legs and arms neck torso all over. It...