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Thank you all for your kind words. I still miss my Dad very much. It still feels like yesterday. I hope they find a cure for this awful disease soon.

Sorry to hear about your Dad. I know how hard it is

Edith, I am so sorry to hear about your mothers passing. I know the void you must feel. My thoughts and prayers are with you. Jacquelyn

I just wanted to let you all know that my Dad passed away in his sleep early this morning (January 20th, 2008 ). Thank you all so much for your advice, support and comments over this past year. It has been a difficult battle.

I asked the doctor what could be causing the delirum in Dad. He told me that it could be a part of the progression of any terminal illness. The delirum hasn't gotten any better. If anything it has gotten worse. Dad gets agitated more and more and we keep him medicated cause it seems like the...

Dad had been on bipap now for over a year now. He only takes it off to take his meds. I asked the doctor if it could be the oxygen level to his brain. But because he doesn't have blueish color fingers or around his lips he doesn't think that this is the case. Dad has been on morphine now for...

Another change in Dad's condition.... Since New Year's Day Dad's condition has changed. He is developed "delurium". Some of the time he doesn't seem to know where he is or who we are. He often asks "if we are staying here again tonight" when he has been in his same bed now for over a year...

I was just wondering how ALS affects the bowels/bladder/kidneys. I always thought that the bowels and the kidneys weren't affected. My Dad has been having pains in his stomach this past couple of days. He also has been urinating often, usually every hour or so in the daytime. At night he...

Sara, Thank you so much for sharing your story with me. It touched my soul. I am going to give my Dad a hugh hug right now. Jacquelyn

Dad has been eating very little over this past couple of days. Mostly jelly, ice cream and "boost". It is so sad to see him like this. He is like he is trapped and can only move very little. We have been thinking that "time is short" for quite a while now and he still manages to hold on. I...