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    Hey Mike. Are you doing better? Hope you found out what has been going on.

    Hey Mike. Are you doing better? Hope you found out what has been going on.
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    Fast progression and both limb and bulbar onset?

    Thanks Laurie for the info! Reporting back... TBH I just had a very unsatisfied neurologist appointment. Since both my 3rd EMG and blood test didn't show any alarming signs(or "almost perfect" phrased by my neuro), him and his assistant immediately tried to prescribe me a month worth of...
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    Fast progression and both limb and bulbar onset?

    Thanks for you all for the couragement and I truly appreciate your support. I had some blood test after my third EMG and it showed I have slightly positive anti-sulfatide, anti-gd3, anti-gm3, and anti-gd1a antibodies. I have no idea what they might indicate and my next neruo appointment is next...
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    Fast progression and both limb and bulbar onset?

    Hello, I coming back with some updates. To clarify about the oxygen mask, I was having a hard time breathing normally after the body-wide spasm(even my lungs, like they are contracted and locked and I couldn't push air inside) so the nurse put me on pure-oxygen mask (still need to breath myself...
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    Exactly, it feels like they just downplayed all my clinical presentation when the EMG came out...

    Exactly, it feels like they just downplayed all my clinical presentation when the EMG came out (before they were worried about my atrophies).I tried to show them how my tongue is getting smaller from the edge (I beatbox so I know how a normal tongue should feel like), but all they asked is to...
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    Yeah EMG may not always be the answer. I actually had an EMG two days ago during my hospital...

    Yeah EMG may not always be the answer. I actually had an EMG two days ago during my hospital stay, they told me the technician who does the EMG is the best in my province. Yet when she stucked the needles in, all she said was "perfect" and "10 out of 10"... Just so much pain for so little...
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