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  • Users: witzz
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  1. W

    What would you do?

    Hi all, Thanks for your support these past months. My mother died of ALS in February 2008 and I miss her like crazy. It's good to know that there are people out there who understand. I'm writing today because I have a friend who's been having symptoms that scream "ALS!" to me. It started out...
  2. W

    How to cope?

    Hi Jessica, I just wanted to respond to the fact that you're in NY and your dad is in VT. My mom was diagnosed last June, and she was in MA while I live in NY myself. I, too, visited as often as I could but it was basically every other weekend until the very end (when I was up there for about 3...
  3. W

    Hello

    Hi mg, Sounds like a very tough situation. I'm sorry that you're having to see your mother in such a state. It must be awful for you. As for her not handling things well, and your father not supporting her the way he should, that is very sad, too. One of the things this awful disease teaches us...
  4. W

    searching for smiles

    Hi, I'm so sorry for your loss. You've literally been taking care of your mom for half your life. It's no wonder that you are feeling unable to cope. I would definitely suggest that you look into grief counseling. There's no shame in asking someone else to help you find your way; that is what...
  5. W

    Not sure how to help.....

    Hi, How lovely that you want to help! That is a wonderful thing. I would suggest that you offer everything that you've just mentioned to your aunt. Let her decide what she needs - and her needs might change over time, so it never hurts to offer again down the line even if she says she doesn't...
  6. W

    frustrated beyond belief

    Hi, I'm not sure what to say here. It's clear that you're in a terrible situation and I'm sorry. There's no simple solution for this. The only thing I can think of (and others step in here please) is to take control of what you can control. You can't change your father's plight, nor can you...
  7. W

    PAL forgets what happens and blames me

    Hi Elaine, I'm sorry you're going through this. I know that ALS can sometimes affect the brain and cause some dementia...but I'm also wondering if it might not be the painkillers your husband is on. I suggest you ask the doctor about that. My grandfather had Parkinson's and we thought he also...
  8. W

    When does it get easier

    Hi Sass, My mom died Feb 25 and I keep going up and down like a yo-yo. I'm guessing that this is normal...that is, any way you are grieving is normal. You suffered a huge loss and it's going to take a lot of time for you to get over it (as much as any of us ever do). Especially since you didn't...
  9. W

    My sister is in a better place now.

    Hi Pam, It's strange how so many of us lost loved ones at around the same time. My mom passed away peacefully on Feb 25. It was great that you could be with your sister at the end, as I was with my mom. May you be comforted in your grief. I know Mom's in a better place but I miss her so much...
  10. W

    Mom is dying

    Hi Paula-Jane, Sounds like you also did right by your mom. It's very hard to know you did the right thing at the end, because you never want to lose your mom. But giving her release from suffering was a great gift. Best wishes, Witzz
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