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  1. NorthernCalif

    Newly Diagnosed (Day 2). I have a daughter and pregnant wife. We are devastated. Need help.

    My husband and I can sympathize with you... My husband is 74 and has been diagnosed with Bulbar ALS just this year.... because of your age our hearts especially go out to you! Every case seems to be totally different! My husband lost his voice very fast and for precautions I would recommend to...
  2. NorthernCalif

    Feeding tube decision...

    My husband has had his feeding tube since September 11th... it’s been a Godsend... he’d been eating by mouth up to that point but with his swallowing problems he would have a hard time getting food and beverages down safely and he was losing weight ... after getting his feeding tube he...
  3. NorthernCalif

    Bulbar Onset - Relentless Coughing

    My husband is recovering from aspiration pneumonia... he had been coughing and I was unsure if it was the disease or something else. He had a chest X-ray and we found out it was aspiration pneumonia. He is just finishing up with 10 days of antibiotics, 3 times a day. The pills were very hard...
  4. NorthernCalif

    Emergency situations

    Since my husband has had Bulbar ALS he is basically not able to speak.... any ideas to help if something happens to him when I’m not right there with him. Yesterday he was upstairs at our cabin and was stung by a bee but I didn’t have any clue until he came downstairs, he wasn’t able to...
  5. NorthernCalif

    Bulbar onset, developing quickly

    We live in Northern California—5 hours north of San Francisco. My husband was diagnosed in May 2020 with Bulbar ALS. He started slurring his speech in October 2019. He is a veteran so we are working through the Veterans Administration for his health care. In January 2020 we figured he might have...
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