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  1. K

    If you have children in the family affected by your ALS

    Thank you so very much for sharing this information. I am hoping that my children can go and be encouraged!
  2. K

    Pill crushing help

    Quick and easy... -
  3. K

    Tracheotomy recovery time

    Your situation is unique since you have the ability to move around on your own. Maybe you could get a wheeled stand like they use in the hospital to hold ventilator device ? That way you could just wheel it around with you. I was only in the hospital for 7 days. I have had a great experience and...
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  5. K

    Our emergency group for when the forum is down

    Thank you for your help and support. This is a tremendous gift to have this opportunity to be in community.
  6. K

    Awful acid reflux with PEG tube

    I had a hard time getting used to Kate Farms too. I added prune juice to my pills and warm water first thing in the morning. And switched to VANILLA, that made a big difference. There is so much fiber in each shake that it took time for my body to adjust. I have been able to stay healthy and...
  7. K

    Facebook Tobii Dynavox Community

    Thank you for sharing this information.
  8. K

    Gastric Overflow

    I belly burp too lol. What helps contain the mess is my family keeps the hose clamped and adds the syringe ( without the plunger) . The syringe is enough extra storage space to hold anything that comes up. I hope that I made sense. I am praying for you as you navigate through this journey.
  9. K

    been having some knee pain.

    This is great information. Thank you for sharing.
  10. K

    Passing of mytmouz

    You are sweet to let us know. I will be praying for you and your family. I am sorry that you have to go through this sad experience. I pray that you will feel loved and supported. May God grant you peace and provide for you and your family. Sending you a big hug.
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