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  1. R

    PALS passed away

    Thank you
  2. R

    PALS passed away

    Hello, I have been too busy to participate in this forum by writing for the most part. I would typically get into bed at the end of the day and just look at new posts when I got an email saying there was a new post. Always too tired to log in and respond. Anyway, my husband passed away in...
  3. R

    Radicava (oral) approval time

    no, he is not on the iv
  4. R

    Radicava (oral) approval time

    We too are trying to get the oral Radicava. We just received denial from private insurance company saying "The use of this medication without normal respiratory function with a forced vital capacity (FVC) greater or equal to 80 percent does not establish medical necessity for this drug..." Is...
  5. R

    Itching with no rash

    My husband itches, it's his head and face. And he can't scratch himself. Very challenging. We were wondering if it's a side effect of the Riluzole.
  6. R

    One person Hoyer transfer

    Thanks Nikki. I was in touch with Tom.
  7. R

    One person Hoyer transfer

    I went with the Liko HiBack that Jim recommends. It is working well for us. Long story short, I ended up with a size small sling that I am not using. JiminVA very kindly lent me his used size Large sling while I was fighting for them to send me the correct size. It was very helpful because we...
  8. R

    Toileting help/Sling advice

    How ironic, as the disease progresses, his abilities regress, my skills advance, and we call that progress! Thank you Jim for guiding me in the right direction and lending me the sling. It is working well now for me during the day, and the nighttime caregivers are learning. I am still waiting...
  9. R

    Toileting help/Sling advice

    One more problem, despite lowering him as far to the back of the toilet as possible, and despite the fact that the Liko high-back hygiene sling keeps him in an upright posture, he still ends up too far to the front of the toilet. There is a bidet seat which makes the hole smaller than an...
  10. R

    Toileting help/Sling advice

    Thanks everyone. The problem with the back flap for us is my husband is not ready to give up underpants. And the fabric was too heavy for summer. I did find some pants called carezips that have zippers part way down the sides and another zipper across the crotch for using a urinal. They are a...
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