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  1. Jennie0813

    Continued bulbar/swallowing/voice concerns - please help

    Hi, I’m sorry - I can’t post in my last thread because it was closed. I had some initial questions about bulbar onset previously, and I am still worried. as I think I mentioned in my prior post, my throat felt constricted and I felt like I had to take deeper breaths for satisfaction. There...
  2. Jennie0813

    Bulbar symptoms related to throat

    Just to be clear - I can swallow and drink/eat normally (seems normal to me). Except than when I swallow, something feels stuck and I almost feel like I’m going to be vomit. On one hand it seems like globus, but the vomit feeling freaks me out. I also can hear the phlegm in my voice if that...
  3. Jennie0813

    Bulbar symptoms related to throat

    Right, I really didn’t want to go back to the ER but I was really struggling with being winded from talking, etc. I opted for a double dose of Ativan (it’s a low dose to begin with) in the hopes it would relax my throat - decided against ER. I really want to walk away from these paralyzing...
  4. Jennie0813

    Bulbar symptoms related to throat

    i was deciding between another trip to the ER or try to calm my nerves at home. As much as I tell myself my symptoms may be CAUSED by anxiety, I’m just not totally convinced. A number of als sites indicate difficulty breathing can be an early sign, especially laying down or after working out...
  5. Jennie0813

    Bulbar symptoms related to throat

    Thank you. I appreciate your kindness. Is there a way to delete a profile?
  6. Jennie0813

    Bulbar symptoms related to throat

    I’m sorry I’m starting a new thread but I had deleted my last thread and my old thread was closed earlier this year. I want to preface this by saying that I am very thankful and appreciative of all the advice that has been provided here by extremely patient people. I have read (and reread) the...
  7. Jennie0813

    Heavy shoulders - als? Also please suggestions for anxiety

    I did read it, thank you. I am just freaking out and bilateral arms weakness and als just terrified me. I desperately want to be wrong. I’m sorry I asked for anxiety advice, I just thought others posting here (many of whom appear to have similar anxiety) might have something to add. I have...
  8. Jennie0813

    Heavy shoulders - als? Also please suggestions for anxiety

    For a few weeks I noticed tingling/pins and needles in my dominant left hand, and this feeling of coldness from the inside (not cold to the touch). I called my pcp and she set me up with a neuro on June 1. No clue whether I will get testing done that day. over the past days or two both of my...
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