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I've had something on my mind lately that I would like to share with everyone. 4 years ago this coming April, after spending 42 days in the hospital and the last 7 months flat on my back in the bed after going on a ventilator, I was being prepared to be released to go home in the next few days...

Nov. 2013 marks 8 yrs. since my wife and I made that long drive to Houston, Texas for a 2 day series of tests by Dr. Stanley Appel and his team at the Methodist Neurological Institute , 2 yrs. after the onset of my physical problems. After 2 days of testing, Dr. Appel gave me a diagnosis of...

When going to another Dr. in July of 2008 for a 2nd opinion, he told me after doing the physical examination that he didn't think I had ALS. He based his opinion on the fact that there was no stiffness or spasticity present in my body. I was diagnosed with "Probable" ALS in Nov. 2005, 2 yrs...

I had posted here earlier on having sudden onset of flu like symptoms while having some of my IVIG treatments. I went to the Dr. this past Monday and while I was there I had my pickline flushed out. It had been 3 weeks since it had been flushed out. When the nurse flushed the 2nd line out I...

I went to see Dr. Vedanarayanan, professor of neurology at the University of Mississippi Medical center on July 3rd. Upon completion of his physical examination of me he said what I had didn't appear to be ALS, due to not having any stiffness in my body and the lack of spascisity in my body. He...

I had a song with the video that I wanted to post but I suppose I don't know how to. If anyone knows how to post a video from youtube on here please let me know.

I was wondering if anyone has ever heard of ALS causing stiffness in the shoulders? When I went to Houston 2 yrs ago that was one of the things they checked on me was the movement in my shoulders by getting me to raise my arms over my head and behind. I have never noticed any stiffness in my...

Since I'm new to this forum, I would like to give my story up to now and hopefully it won't be too long. First of all I want to make it clear I'm not looking for sympathy and on the other hand, by no means do I mean to be bragging about anything that I say. To the best of my knowledge, it all...