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  • Users: lovelily
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  1. L

    Close to the Holidays

    Hello Friends! It's been a long while....My last muscle, nerve skin, and sural nerve biopsy was September 30th. It took over 8 weeks to get the results. This is the 3rd biopsy for me ( for those who don't know my situation ) and this is the 3rd time it is abnormal. This one...
  2. L

    Hair loss

    Hello good people! Just a quick question, for all of you that have muscle atrophy/denervation. Have you noticed in these areas a complete loss of hair growth? My legs have lost their hair, where their is atrophy. I hardly need to shave them....not that that's a bad thing, for a...
  3. L

    Quivering Voice 'ENT' Appointment

    Hello Everyone~ I just wanted to update on what has been happening with some of my symptoms, since the early summer time. My neurologist noticed a 'slight' quiver in my voice. I said, "I hadn't noticed". Over the last 9 months, or so, it has gotten exceedingly worse. Time to visit...
  4. L

    Going for MRI

    Hello Everyone~ Well, it looks like I am joining the race to some kind of diagnoses for my atrophied/denervated knee, and calf this coming Friday, morning. Doctors are looking to see if there is some type of 'occlusion', like a clot in a main artery that caused permanent damage to that...
  5. L

    Merry Christmas! Happy Chanukah!

    Hello Friends! :smile: Before things get too busy in my home, I would like to say 'Merry Christmas' to all who commemorate the birth of Christ. May He bring peace to your homes, and God grant you all very slow progression of disease, in the new year! Thanks Al for having this...
  6. L

    Today is a good day!

    Hello! I just wanted to share with my friends, that today is my 32nd Wedding Anniversary. I married my High School sweetie. I was 18, he was 21. Many people said it wouldn't last. I am happy to say that we are still 'in love'. :D We have three beautiful daughters. Two are recently married, and...
  7. L

    Rejected

    Hello good people. Well my title says it all. I am not a candidate to be seen by this doctor. :? I have no clue yet, as to why. I called my neurologists office and he is suppose to call me today. I told the receptionist since my last visit (2months) that the top of my right hand is...
  8. L

    UMDNJ left me a message!

    Hello! I had a doctor's appointment today, and when I came home there was a message on my machine to call to make my appointment with Dr. Jennifer Michaels! I tried to call back, but they had gone for the day...I left a message, returning their call. so I am sure I will hear from...
  9. L

    Medical Record Sent

    Hello Everyone! I just spoke with my neurologist's office, and was told that all my medical records have been faxed over to the office of 'Doctor Jennifer Michaels' at 'UMDNJ' University Hospital in Newark, New Jersey. Horray! I am hoping I will be accepted as a patient, and she...
  10. L

    a few questions?

    Hello Everyone! I just have a few questions, for you kind people...especially anyone who was diagnosed via muscle biopsy and other symptoms. If anyone remembers, I have had 2 biopsies one showed 'myopathic changes' (arm) but the other one (leg) was a paragraph long all about...
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