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  1. S

    UC Irvine ALS Clinic

    Does anyone go to the UC Irvine Clinic in Calif? I started with UCLA and then switched closer to home at Loma Linda Clinic. MDA rep wants me to try UCI. Any info would be helpful. Sharonca
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    I'm in MDA Mag!

    Check out the MDA/ALS Magazine for March. I contributed to the article on Schemers and Scams. There is even a pic of me with my youngest granddaughter! Really fun to be a part of this! Sharonca
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    New Site for ALS Awareness

    Hello friends, I'm hoping to get you to come join this new group and help in raising awareness of ALS/MND. WE are pals, cals, friends from various forums and sites coming together and trying something new. Please go take a look and I hope you join us. Anyone and everyone is welcomed to...
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    I'm in the hospital!

    So I go to the ER for the second time in two weeks. First time the tell me I have a kidney infection (with no pain, no outward symptoms) that is affecting my diaphragm and rt lung. Antibiotics for a week and then think I'm fine. Thurs 3am (or is that Fri) anyway. Terrible pain in right lung...
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    Life Insurance Benefit

    After a couple of months of trying - next week I will be getting my "accelerated" life insurance benefit. I have State Farm Ins and Whole Life policy. Ended up I had to take it as a loan but will end up getting $120,000. Plenty to pay off my bills and do what home modifications I need for the...
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    Questions

    I have an acquaintance who today was told by her GP that she had a serious neurological problem and needed to "ralley the troops". Scary, huh. She is especially scared since I am recently diagnnosed with ALS. She has had severe back pain for several months and today was told that, I think, one...
  7. S

    Ketogenic diet

    Hi All... I plan to start the ketogenic diet today. I was diagnosed 12/07 with leg onset and walk with a cane. I starting having fasc in my hands and lips this week. My voice sounds different (almost everyone I talk to comments on it). I am at least 50 lbs overweight and feel I can try...
  8. S

    Newly Diagnosed

    Hi- this is my first post. I was diagnosed yesterday at UCLA by Dr. Michael Graves. I was hoping for something short of "ALS". I was hoping that he would say "watch and wait". He said ALS. I first starting losing my balance and occasionally falling around May 2006. I fell and broke my...
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