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  1. cbiedron

    Mark W. Biedron, former NJ State Board of Education President

    I lost my sweet husband and best friend Mark Biedron on Friday. Mark was diagnosed in April of this year. The battle was rough but the end was so peaceful, and I was incredibly honored to be the one to care for him and hold his hand from the very beginning to his very last moment. Mark was...
  2. cbiedron

    Thoughts on how my PALS Is feeling?

    Thank you everyone for all your valuable advice here. My husband was diagnosed in March, bulbar onset, and now needs me to do everything for him. He has a feeding tube, trilogy, cough assist, suction, hospital bed and lift. His FTD prevented him from learning how to use a communication device...
  3. cbiedron

    Best manual wheelchair for grass/gravel?

    Greetings, I’d like to purchase a wheelchair with rugged wheels to push my sweetheart outdoors in the grass or on a gravel path. Does anyone have a suggestion? Thank you!
  4. cbiedron

    Altitude, travel suggestions?

    Greetings everyone. My sweet husband and I are flying to Denver for a week. Prior to his diagnosis, we purchased a piece of property at 9,000 feet and began building our dream retirement house there. It is our favorite place and I know the trip will be challenging but I think it will be good...
  5. cbiedron

    Husband was just diagnosed...I'm so worried and not sure how to help.

    My husband was diagnosed on Monday and getting a second opinion next week. All his symptoms point to bulbar onset (slurred speech, difficulty swallowing, coughing all the time). Sometimes he will cough for a long time and I'm afraid he cannot breathe or will choke on food. I'm terrified. Is...
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