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It's been almost 4 weeks since I said good-bye to my Joe. He was our sun, the constant in the family who we all gathered around. The one who was steady and composed, a big kid who found fun in little things. That's how he faced his journey. He kept an even keel while I ranted at the enemy...

The past few days have been (insert appropriate word here that I’m not sure of) wednesday my PALS went for his feeding tube. He’s not a complainer and has a high pain threshold but does get anxious before anything like this. Because of the ALS they told him no anesthesia and explained the...

Early May I posted feeling overwhelmed and several of you kindly responded and helped me calm. This is a belated thank you and I figured I’d just let you know where we are now. Today my PALS turns 54. The same age his mother was when her ALS journey ended. It’s hard not to think about that...

Three months ago my husband was packing for a 3-week business trip in India. He had been complaining of shoulder aches and pain for about 6 months or so that the doctor thought might be the mattress or pillow and had been battling fatigue that was attributed to work stress and very very low...

I'm asking about my husband. His mother passed in 1997 at the age of 53 from ALS. We have no contact with her mother's side so don't know if there were any other cases of ALS before her. She has 3 sisters, all now in their late 70's or 80's without any symptoms. About 9 months ago he started...