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  1. M

    Hi Hal, I agree. I think weakness in arms & shoulders would strain the neck. I hope you are...

    Hi Hal, I agree. I think weakness in arms & shoulders would strain the neck. I hope you are keeping active & well. Dad is doing fairly good. We renovated a bathroom, a shower vs a tub and lower switches/plugs and lower sink countertop. We saw snow today, he doesnt tolerate the cold weather well...
    • Mon
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  2. M

    Pain

    Hi everyone, Ive been on a number of times over the years. My dad has flail arm Als. We are 1.5 years into dx and 3 years onset. Recently he is complaining of neck/shoulder stiffness and pain and some pain in left arm. His neck is not leaning forward, still seems strong. Is anyone experiencing...
  3. M

    Hi Hal. We messaged last June..my dad has flail arm. I hope you are doing well and managing. I...

    Hi Hal. We messaged last June..my dad has flail arm. I hope you are doing well and managing. I wanted to ask you if you experience neck stiffness? Dad is having muscle stiffness in neck for a few weeks. It could be related to doing things awkwardly, we just arent too sure. Its not weak, just...
    • Mon
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  4. M

    Alternative treatments

    Thanks Nikki i didnt notice. I didnt find much on it except those articles.
  5. M

    Alternative treatments

    Has anyone tried or heard of Radio Electric Asymmetric Conveyer(REAC) as a type of stimulation in dysfunctional motor behavior? Thanks in advance for your time.
  6. M

    It is sad but we have to look at it like we are lucky within a unlucky group. After seeing this...

    It is sad but we have to look at it like we are lucky within a unlucky group. After seeing this disease im so grateful dad can walk..talk & breath easy and eat.
    • Mon
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  7. M

    That is fantastic news, im happy to hear. My dad is similiar, still all arms, and they have...

    That is fantastic news, im happy to hear. My dad is similiar, still all arms, and they have continued to weaken, however he can still write, eat himself and do most personal care. Hands are definately weaken as well, especially if he over does anything. Legs, breathing and speaking all strong...
    • Mon
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  8. M

    Hi Sassy, How is your husband and yourself doing? We chatted last spring and you mentioned your...

    Hi Sassy, How is your husband and yourself doing? We chatted last spring and you mentioned your husband has flail leg..my dad has flail arm.
    • Mon
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  9. M

    Enjoy your road trip & hiking.

    Enjoy your road trip & hiking.
    • Mon
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  10. M

    Circumstances are doing or trying.

    Circumstances are doing or trying.
    • Mon
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