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  1. JohnHMich

    Stopping by to say hi!

    There have been some rough months in the middle. I have a grief counselor that I have been talking to about abandonment anger. But for the most part, things are improving. It’s a process.
  2. JohnHMich

    Stopping by to say hi!

    It's been awhile with its ups and downs. I hope everyone is doing well in spite of the challenges. All the best, John
  3. JohnHMich

    Angela Barber

    My wife, friend, and companion of three decades, Angela, died this morning freeing her from the suffering and indignities of ALS. Thank you all for your years of patience and wise counsel.
  4. JohnHMich

    Kia Soul wheelchair conversion

    My wife is to the point where she cannot travel in the car. 2019 Kia Soul wheelchair conversion with rear manual ramp, auto retracting tyedowns Asking Price: 20,000 Mileage: 54,000 Exterior color: Grey Interior: Grey Contact: 734 9970404 Ann Arbor, MI
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  8. JohnHMich

    Signs of general decline...

    Amazingly we have made it to October. I have no idea how, really. I was sure the choking, cough box, suction routine was going to eventually be what ended things. But it has become rare again with a lot of fiddling. We are finally getting her pain and anxiety under control. Air hunger seems...
  9. JohnHMich

    Orange mucus from cough assist? To high a pressure?

    We are doing the anomalous symptom of the day lately. Today there was a cough assist useage that brought up bloody and orange mucus. We have been having trouble with secretions and have been trying different controls to limit and thin them. The nurse doesn't think its pneumonia. There was a...
  10. JohnHMich

    Signs of general decline...

    It has been awhile since I have provided an update. We are starting to have issues with intake again. We have reduced her food and water to avoid problems with nausea, stomach pain and large differences between intake and output. Her skin issues are spreading around. Cyanosis in her toes and...
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