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I’ve had peripheral neuropathy for years now, long before I got my diagnosis of ALS. My own doctor could only suggest nortryptolenen which helped for a short time but real relief came once I got Lyrica. My feet are purple and throbbing but not painful.

I’m looking for a four wheel drive vehicle which will cope with our quarter mile driveway in the middle of nowhere but have to manoeuvre my wheelchair behind the passenger seat. Any recommendations?

Thanks for the welcome messages. It’s the least popular club. One thing is always on my mind, at the end how does one actually die?

My als symptoms probably started 3years ago but took too long to diagnose. Because I kept falling over always requiring skull MRIs to check for brain bleeds and once they found a meningioma or benign tumour in my brain. That tumour was removed 2018 so I thought my problems were over but the...