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Hi everyone. My mom was confirmed C9 fALS and now I'm starting to think about testing. I'm a bit of a hypochondriac so it's very tough not knowing and analyzing every muscle quiver, jerky reflex, and every time food goes down the wrong way. I know that I should consult a genetic counselor first...

Hey all, We're having tough days. My mom's breathing issues have increased and she's really uncomfortable and short of breath. We're giving her morphine to try and help with a little success. But the real issue is that she's stopped tolerating her Trilogy today - every time we put it on her...

Hi everyone! We're trying to get a hospital bed for my mom, and a local DME suggested that we get a Drive Prime Care Model P903 (with his description: "it is a superior full electric bed compared to our standard bed and comes with an upgraded 5 zone mattress.") I've attached the PDF flyer that...

Hi everyone! My mom (PBP, dx a year ago) has been dealing with extreme fatigue recently. Fatigue and lack of energy was one of her first major symptoms, but it's really ratcheted up in the past two weeks. She spends the whole day in bed, and short trips to the bathroom with the walker deplete...