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  1. Bigshawn44

    EMS studies for slowing Muscle Atrophy

    I was reading a small study that was posted in ALS Therapy Institute forum where Electronic Stimulation Therapy was used for stimulations to the nerves that have died or are dying and slowing atrophy. From what I read that with routine stimulation therapy to the atrophying muscle was able to...
  2. Bigshawn44

    My PMA just got diagnosed to ALS

    That so far has been the same for me as well.
  3. Bigshawn44

    no everything started in both calves. I had a total of 4 EMG before they didn't have to do...

    no everything started in both calves. I had a total of 4 EMG before they didn't have to do anymore. But that's not a test that tells them you have ALS it took that and all other symptoms. But for me the most important information was found on a muscle biopsy.
  4. Bigshawn44

    Hello I keep typing responses but it will not let me send what I want saying it’s too long. I’ve...

    Hello I keep typing responses but it will not let me send what I want saying it’s too long. I’ve tried condensing it but nothing. So I’m going to give short description. Starting in my legs with no other issues. Over next year progess to diminish swallowing and breathing. Took about 2 years of...
  5. Bigshawn44

    My PMA just got diagnosed to ALS

    Thanks Bill It definitely has been a rough adjustment and I’m sure it will get better. Everything is just happening too fast at the moment to adjust.
  6. Bigshawn44

    My PMA just got diagnosed to ALS

    Thank you. I’m going to try and do better.
  7. Bigshawn44

    My PMA just got diagnosed to ALS

    Thanks for clarification. I’m not at point where I need feeding tube but have issues swallowing. Just have to drink more fluids while eating and have increased saliva bad after eating.
  8. Bigshawn44

    My PMA just got diagnosed to ALS

    Thank you What do u mean by maintaining weight will help with progression? Ever since I started having swallowing issues I lost all appetite and have to remember to eat. I have a slow decline in weight but I think it’s from losing muscle so much.
  9. Bigshawn44

    My PMA just got diagnosed to ALS

    Thanks for the quick response. I am not making money when I say I’m working. I’m actually helping family and trying to keep my mind busy trying to not face the reality of what I’m going through. I’ve worked since I was 12 and it’s hard to just sit and not do much. Is there any kind of funding or...
  10. Bigshawn44

    My PMA just got diagnosed to ALS

    Thanks for the replies. Within the last 2 weeks the progess as kept going. Now I’m unstable going down steps as my legs shake. I started the riluzole 2 days ago and waiting for radicava approval from insurance. I have been severely discouraged that I have lost so much strength in such a short...
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