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  • Users: Don
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  1. D

    Slow progressing ALS. Where its led me to.

    Hello Dignify, you have surely been through a lot of personal problems and I will keep you in my prayers. I have not been through what you have but I am in an advanced stage of ALS with limited time left. Don't know if you are religious but the Priest at my parish visits me regularly and always...
  2. D

    Morphine for breathing

    Thank you all for the feedback
  3. D

    Morphine for breathing

    My hospice nurse has suggested the use of morphine under my tongue in extremely small quantity to relax me and make breathing easier. I have not tried this yet, has anyone else used this treatment?
  4. D

    ALS comorbidity

    Hi Jethro, there probably is no link to ALS but I got shingles 8 months after diagnosis. There is a new vaccine now and I would check with your doctor to see if it would be good for you. Shingles was very painful for many months. That coupled with my ALS was an experience I hope no one else has...
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    Numbness anyone?

    I have the same symptoms but in my right hand. Little finger and ring finger are numb and I cannot move them. My neurologist thought this might be a result of leaning on my right elbow pinching off nerves and not necessarily a symptom of my ALS.
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    Looking for ways to slow Bulbar Onset ALS progression

    My initial symptoms were foot drop and leg weakness but 2 weeks prior to my diagnosis I began having trouble chewing, swallowing and speaking clearly. One of the first things done during my first hospital stay was a chest x-ray and a Thymoma was discovered. This led my neuro to think I could...
  7. D

    Feet and calves swelling

    Thank you, I do have a power chair and I try to get a comfortable lift for my feet but just cannot find the right position. I sleep in a hospital bed too and will raise my knees and legs more.
  8. D

    Feet and calves swelling

    Hi everyone, I have a question on wheelchair side effects. I had a fall 3 weeks ago using my walker and now I am in my wheelchair all day. My legs have just lost too much strength. The problem is now my feet and calves swell terribly, to a point where it is difficult for my wife to put on my...
  9. D

    3 year dx anniversary

    Hi Kristina, you really have writing skill putting your feelings into words. I too remember 3 years ago when I could mow the lawn, wash the cars, do chores and other things. My speech is often hard to understand as well, and like you I try to focus on the good things. I love reading your...
  10. D

    First post on this forum

    <quoted text removed> Hi Ward, like you I had foot drop early on before I was diagnosed and fell frequently. My legs weakened but I still managed the 15 stairs to go to bed. I was fortunate the first time I fell down the stairs from the 7th step and was only bruised. The second fall caused a...
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