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  1. Missgranma

    Nearing end?

    My sister is completely paralyzed now except for eyes and still able to smile beautifully. She indicated to me she could feel the CO2 building up in her body despite ventilator use (bipap). She thinks the end is near and wanted to discuss some affairs issues. She wants hospice but her husband is...
  2. Missgranma

    Fast progression

    My PAL (sister) has had rapid ALS. Diagnosed Sept 11 last year she could walk with cane to the past few months has progressed to unable to speak, eat (PEG) or move at all. I wish we'd had time to adjust. I can see and feel she is near the end. At 58 and at the height of her career and looking...
  3. Missgranma

    Decline after peg surgery

    My sister has had a fairly fast progressing ALS having been formally diagnosed Sept 2019. Limb onset has given way to inability to speak intelligibly at all and just had a PEG placed this past week due to very poor swallowing, dehydration and weight loss. My concern is her distress and...
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