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Thank you so much. Sad and beautiful conclusion to the end of a horrid disease.

Thank you. I have felt everyone in this forum supportive and I do feel peace.

Eilleen.... Whatever you did or didn't do I can't think of anything more selfless and beautiful than what you did. The helplessness of the unknown was alleviated by your presence. Michele's passing was very moving.

My cousins wife (veteran RN)and another cousin are at my sisters now helping my brother in law with Michele's "transition". She is officially getting hospice care and after a difficult week of painful spasms, horrible anxiety and air hunger...she is resting comfortably . Even though I know she...

Thank you so much for your compassion. Im finding the responses I get extremely helpful during this difficult time

Thank you for your response. We talked about some options this week and I think BIL has some people he will call. It's such a hard thing because he is her main "lifter n chief" and she knows its hard on him yet he resents being criticized for not moving quick enough. I love my sister but I...

My sister is completely paralyzed now except for eyes and still able to smile beautifully. She indicated to me she could feel the CO2 building up in her body despite ventilator use (bipap). She thinks the end is near and wanted to discuss some affairs issues. She wants hospice but her husband is...

Thank you all for your empathy and advise. Google Joan Halifax. Going to get her book. Nice to know we're never all alone.

My PAL (sister) has had rapid ALS. Diagnosed Sept 11 last year she could walk with cane to the past few months has progressed to unable to speak, eat (PEG) or move at all. I wish we'd had time to adjust. I can see and feel she is near the end. At 58 and at the height of her career and looking...

Please....I need some response. I've gone from having a sister and trying to make sure all ducks were in a row with ALS. The best equipment etc.. to feeling completely slain by this demon who has left her motionless. I was just bragging a few weeks ago how I knew what she was saying. Now none...