Search results for query: *

  1. J

    Recommendations

    Thank you for your feedback! I appreciate it. The fasciculations are all over but the areas of concern I’ve had are mostly the same, just worsened, and then some new progression added. No total failure yet of extremities, you are correct. Not counting in the shortness of breath and swallowing...
  2. J

    Recommendations

    Thank you. Last I tried to get into Mayo I was denied. I haven’t tried since having more symptoms. My emg didn’t do any bulbar muscles, he did leg and arm, didn’t do hand either. I just hate having the emg done but am I right I’m guessing a new neurologist will want to do their own? I’m just...
  3. J

    Recommendations

    Hi. I don’t know how to post on a thread after it’s been closed, I don’t want to open a new one but not sure how to do it. If someone knows how to merge these or wants to tell me I can try and do it. Sadly I am still in the same boat as before, just progressed. My right leg is continuing to...
  4. J

    Shaking

    Just an update. Still no new news on the Mayo front, still awaiting an approval for appointment. My speech has continued to feel diffucult, mainly my tongue, and I have issues with swallowing at most every meal, so my neuro is sending me to his speech doc for an evaluation and swallow study...
  5. J

    Shaking

    Yes I very much remember the audience of this page, my intentions would never be to be cruel. That’s also why I’ve waited so long to update as I’ve never wanted to take up excess time. Do I think I have some anxiety related to my current health, yes. Do I think it’s causing all my symptoms, no...
  6. J

    Shaking

    Does anyone else have any experience like what I am having?
  7. J

    Shaking

    And thank you for attaching my previous thread. I wasn’t sure how to do that.
  8. J

    Shaking

    My last neuro appointment he took some videos of it and said he’d send to the doc, it’s just so infuriating because to get in to the other doc I’m waiting another 5 months. Meanwhile my life is being turned upside down.
  9. J

    Shaking

    Latest thread I’m still here. I wish I was totally back to pre ALS fears but I’m not. A little update on what’s going on, I still have the twitching/rolling of muscles. I have what I feel like is slurring but my husband said he’s not sure. I have difficulty swallowing, not every single time I...
  10. J

    Foot drop

    I agree, I think I need a new pcp to help me get to the bottom of this. He did notate weakness on the leg I wrote in about, so that alarms me but hopefully I can see my neuro soon and get his thoughts. I also have extreme muscle mass loss on the inside of my arms, underneath the biceps. I think...
Back
Top