Search results for query: *

I am in the early stages of breathing problems and I'm having a lot of shortness of breath. On top of that I've had several bad falls in recent months. I am now experiencing quite a lot of rib cage pain near the base of my breast bone that goes around both sides all the way to my spine. Is this...

I'm now in my 5th year since the onset of symptoms, and 4 years since official diagnosis. My main symptom has been muscle fasiculations in my limbs. At this time my muscles atrophy has progressed quite a lot, I've lost about 40 lbs. in the last year, and just in the last few days I've noticed...

I’m in my fourth year since my diagnosis and so far it’s been limbs only. Within the last month I’ve been experiencing increased shortness of breath especially when lying on my back. I’ve also developed a twitch in by diaphragm when I inhale. Are these symptoms typical for someone at my stage of...

It's been almost three years since my diagnosis and I've been doing okay up until now. I've lost most of the use of my right hand, and my left hand seems to be growing weaker and losing dexterity and coordination. I'm at the point where all the adaptive dressing aids and eating utensils aren't...

I’m posting this because I haven’t seen any posts about this topic. I’ve been pre-diabetic for years and now I’m struggling to get and keep my blood sugar under control. I tried Metformin last year but gave it up after discovering that my body wasn’t absorbing the tablets. We’re trying Januvia...

I've had back trouble for years, and now ALS at age 66. I was wondering if any other PALS have similar problems with their spine (particularly lumbar spine), and how you cope with it all. I will absolutely not have back surgery!!!

Hello Everybody! I began the phase 3 trial At Wake Forest Monday morning. I was first in line so I served as the guinea pig for the doctors and staff, as it was new to them and they have to follow the protocol. All went well and I got the first dose, along with some lab work and an EKG. I was...

I was diagnosed last October and I’m about two years since the symptoms began. I have limb onset and right now it’s mainly my right hand and arm, with some additional weakness in my hips and legs. Most of the muscle between my right thumb and forefinger has atrophied, so I’m have trouble writing...

I started taking Riluzole in October 2019, and since then I have lost about ten pounds and my blood pressure has lowered. I am having a lot of light-headedness when I rise from a seated or reclining position. Is this from the Riluzole?

Anyone have problems finding a local hospital willing to infuse Radicava? I’ve been waiting nearly two months to get started and three local hospitals have refused to take me on. One hospital that operates an infusion center told us that they “couldn’t get “ the drug. That seems odd. Now I am...