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  1. Fusia

    Another white flag…

    After a lot of introspection over the last few weeks, I have come to realize there is no more benefit to me in my struggle against ALS - my life these days could really be called breathing rather than living. This is not how I want to live my life. I have decided that I will take my prescribed...
  2. Fusia

    Using Alexa device to make outgoing calls

    I have almost no use of my hands and arms at this point, but my voice is still fairly strong. I use the Voice Control accessibility feature on the Apple iPhone and iPad quite extensively. The one big issue I've run into is that when making outgoing calls, Voice Control stops listening after the...
  3. Fusia

    Specific questions for hospital bed search

    I've mentioned recently in a few posts that I am in search of a hospital bed. I've searched and read threads on this forum about what to look for in a bed/mattress, and have looked at many online providers about specific bed models. One of my issues is that the Medicare approved DME providers in...
  4. Fusia

    A shout out to @Jimi for Switchbot idea

    I just wanted to thank @Jimi for one of the things he talked about in his great YouTube video recently, detailing all of the technology that he has set up. I have been having more trouble pressing the power button on my coffee machine - it's way in the back and you really have to press it...
  5. Fusia

    Fine tuning the fit of my PWC?

    I have had my Permobil F3 for a few months now, but haven't used it much - I would still rather walk with my walker while I still can. I typically use the PWC for longer walks/hikes outside when I know I can't cover the distance on my own, but even those jaunts are limited to maybe an hour or so...
  6. Fusia

    Webcast on AMX0035

    The ALS Association Evergreen Chapter had a webcast yesterday, Review and Update of AMX0035 in the Treatment of ALS, presented by Dr. Michael Elliott. I attended and thought the information was very well presented and informative. Here is a link to a recording of the webcast: .
  7. Fusia

    Magnetic charging/data transfer cables

    It's now almost impossible for me to insert a charging cord into the charging port of my iPad. I recently found these magnetic cables on Amazon, where you put a little charging tip into the charging port, which you just leave in the device. Then, you use the magnetic charging cord to connect to...
  8. Fusia

    Advice on caregivers schedule for PALS living alone

    I am a widowed PALS living alone. I was diagnosed in August 2019, currently both hands are not very functional, both arms are very weak, and back is very weak. It is getting more difficult to handle a lot of personal care on my own, including showering, getting dressed, and eating. I think I've...
  9. Fusia

    PWC versus lift chair

    I just acquired an Ultra Comfort lift chair. I'm really struggling with it in 2 ways: First, it's just dang ugly, and does not fit in with the look of my home - silly, I know, but my home makes me happy. Being in my living area with friends or just by myself reading or watching TV is one of...
  10. Fusia

    Power wheelchair insurance?

    In early July, I received my power wheelchair - Permobil F3. I'm not using it a lot just yet, but have taken it out on longer "walks". I recently found a good used wheelchair accessible minivan, and should have that in my possession in about a week. When I called my insurance agent about...
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