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  1. EricInLA

    Voice changes, again

    About 8 months ago, I posted regarding voice changes I was noticing. At that time I was noticing for the first time a weak, raspy, and hoarse voice, plus fatigue. Especially at the end of the day. It was very concerning because prior to that my disease course had been all limb-related...
  2. EricInLA

    Voice changes

    I am experiencing some kind of something with my voice - the best I can describe it is that at certain times of the day I sound like Barry White - and I am trying to figure out if this is what voice weakness is, or if there's any chance it is allergies. (For those who don't know the great Barry...
  3. EricInLA

    Thoughts on ALSFRS-r scores

    I am participating in a research study (through EverythingALS) where they do the ALSFRS survey every week and tell you your score. This has me thinking about this scoring model and I'm curious on opinions as to whether this thing is really useful, and how to tell, for instance, whether my...
  4. EricInLA

    Choking/coughing during sleep

    My wife just told me that occasionally -- once every week or two -- I will wake up choking and/or coughing, and that sometimes I will even go to the sink to spit up whatever I have just coughed up. I had no idea - my brain must be erasing these episodes once I fall back asleep. But it alarmed...
  5. EricInLA

    Thank you Moderators!

    Since we're closing out a (miserable) year, I just wanted to take a moment to thank the moderators of this forum for keeping it running smoothly and per its proper policies. This forum provides a great service to people who are not in a great situation. Some of us find useful advice about...
  6. EricInLA

    Cold limbs

    The weather has just recently turned cold in LA, and I was at an outdoor family gathering this evening. At the end of the evening, my hands were frigid and my right hand -- the weak one -- was SIGNIFICANTLY weaker than usual. In fact, it was pretty useless, which scared me. By now my hands...
  7. EricInLA

    Wishes for a Sweet New Year

    Tonight begins the Jewish New Year, so for all those who celebrate, I wish you a Shana Tova! And for those who don't, I send you sweet wishes too. It’s been a tough year for many of us, so may the coming year be a better one for everyone. May we all experience plateaus in our physical...
  8. EricInLA

    Can we donate blood?

    Does anyone know whether we pALS are allowed to donate blood? There's a blood drive going on at our Temple and I'd kinda like to do it, but curious whether doing so would pose any risk either to us or the recipient. I still consume a normal diet and am good on swallowing so there would be no...
  9. EricInLA

    leg pain

    This is sort of a lighting round question. Until a couple of months ago, my pain and weakness was limited to my upper right extremity (though I've had fasciculations everywhere for quite a while). In the last couple of months - basically since CoronaVirus - I've developed pain in my left leg...
  10. EricInLA

    Shaving (mainly for the guys)

    I am dealing with slowly progressing weakness of my right hand and arm. I am right-handed, so that makes things more of a challenge. One thing that's going on is that my arm gets tired when I shave (I shave with a razor and shaving cream), and sometimes my hand gets these weird insta-cramps...
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